(Lucy is my guest who now and then will share her moments of living with Vitiligo. She is courageous and talented. Thanks Lucy for taking part on the Maipecanswirl Blog! )
Hey Maia
I had one of those I don't care moments and I actually went out to the market without makeup. I was baking bread and discovered I forgot a couple of time sensitive ingredients and I knew this was the only time I would be able to bake the bread and so off I went "all natural"and feeling empowered.
When I got to the market, I found myself trying to hide from the children as I rushed to get what I needed. I started thinking about the story Lee Thomas shared about the kids he came across who were so afraid of him they started crying. The thought of a child being so traumatized, by looking at my face was not pleasant in the least. Needless to say I rushed back home and put my make up on after I finished the bread because I was going back out to a gig with my boyfriend. I have not found the courage to be okay with myself enough to go out and not worry about or deal with kids and people who stare.
So I continue to put the makeup on, so I can feel good enough to be out in public.I imagine it is strange when you think of how socially debilitating this skin disorder is yet I choose to get on a stage and sing in front of an audience. There is something in me, that keeps pushing to do anything I think I can accomplish, just like anyone else. I am learning to achieve my goals and feel good about my choices. I expect that the more I get involved in Jazz music and this business, the more I will be tested. The superficial standard of having a look that is marketable to the masses before looking at the art is ever present and I am learning how to stand behind my principles and not be manipulated by those who does not understand what it is like for people like us and have a different idea of what success is.
This means I may have to really understand the power and understanding that comes from having to say no to a lucrative contract if I feel I or my art is being compromised and most importantly be okay with it.I didn't mean to go on and on, but this is such a great outlet to discuss things that I have not really examined with others that share our circumstances.
I look forward to the dialogue and the union of a diverse group of people that can help to make the quality of life so much better through your blog and the television show. Thanks again and I am so looking forward to it.
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