New White Spots and a Changing Attitude

The white spots on my left lower leg have aggressively taken their place and show no signs of going away!! DAMNIT!! I look at these spots and just say to myself , "I just need more time, slow your roll!... I just need more time I am not ready for this to take over so quickly!!!"

Then I just breathe and look at another part of my body that is smooth, brown and all one complete color. A sigh of relief takes over and I begin to deeply place the thought of my new invasion of white spots into my " I don't want to accept this now or denial section."

Although this does not last for long, I go through this drama moment every time I see new white spots. It seems that the appearance of new spots becomes so consistent that I do lessen my complaints. THen I just move on for the day and think about this blog, the television tapings and my guests who inspire me and my vision for the future. Complaints over! My attitude changes and my energy is redisbursed.

Again, I have to say that the taping of " Turning WHite in Hollywood" taken from this blog, (August 18, 2008) is just getting better and better. My guest Jerome Malry an incredible classical pianist was candid and kind.

Jerome, is the most lovable and pleasant person to have a conversation with and his sense of humor truly added to this complicated topic. He was honest about being a world class performer who doesn't like being in crowds. However, on stage he is so focused in playing the piano and on stage that crowds don't affect him while playing but only when immersed in an actual crowd down from the stage. Very interesting.

Oh boy! can I relate. Jerome's vitiligo is very advanced and if and when mine becomes the same, I must admit my radiant personality may have a hard time keeping up with the reality of stares and whispers that will come my way.

Already, I am not comfortable with people staring at my mouth and hands but have adjusted to it; unless I notice the stare is too hard and too long, then I get agitated. BUt Jerome, admits to hating the disease and loving himself all in the same breath.

It really does make a person with vitiligo feel like they have multiple personalities because of the multiple skin pigment variations. Our moods can really change because of the environment and people whom can say or do things to affect our reactions.

BUt now that I think about it, isn't that true for anyone in any given situation? Whether you have lettuce in your teeth, a booger in your nose, bad breath, an acne breakout, a period spot on your skirt, a bunion sticking out of your shoe, yellow teeth......okay ya get my point right?

So anyway, Jerome is also a former patient of Dr. Grimes and although he now lives in Chicago (my home town) he really respects her medical opinion on this very complex disorder.

AND speaking of Dr. Grimes, we are still patiently praying for her appearance and attachment to this project because we know she dedicates her life to Vitiligo research and has a great relationship with her patients, some of which are children.

MPS is looking forward to Dr. Grimes and Robyn, former spokesperson and model, for the cosmetic brand Dermablend to be guests on the next show taping of "Turning White in Hollywood". Dr. Grimes is certainly the "Library of Congress" on vitiligo and Robyn can show many of us with white spots and skin blemishes on how to cover them up.

So, I will keep you informed. Have a great day and if you meet anyone who looks like they have vitiligo, please pass this blog on to them.

Ciao!
Maia

"If prejudice could reason it would dispel itself"- William Pickens