My show about Vitiligo in Los Angeles

My show about Vitiligo in Los Angeles
Chef Lauren Von Der Pool guest talking about diet !

Tortured Soul -Live House Music Band-and AWESOME!

Tortured Soul -Live House Music Band-and AWESOME!
Hangin with a few members from Tortured Soul!

AT top of Stone Mountain

AT top of Stone Mountain
GOtta always apply Solbar sunblock #50 to my face/body when I am outside in the sun , otherwise my face will burn and the white spots get real pink and will burn. I have no more pigment on my lips & now have to switchup my darn lipstick colors!! so annoying! lol

Me on top of Stone Mountain

Me on top of Stone Mountain
THis is one of my Southern USA oasis. THe hike to the top is beyond amazing!

Sisterfriend and I @ Park 52 Restaurant-Chicago

Sisterfriend and I @ Park 52 Restaurant-Chicago
Not afraid to show my white patches!! gotta be fearless

On Set- Santa Monica, CA

On Set- Santa Monica, CA
My talk show dedciated to people with Vitiligo

Brave and Beautiful Little One

Brave and Beautiful Little One
Vitiligo and Personality!! When I see this little princess, I am so inspired by her ! Pls teach your kids to respect and be kind to those that look different from them, for they are human and are still beautiful inspite of the differences!

Beauty is in the eye of the beholder

Beauty is in the eye of the beholder
Love unconditional-vitiligo or not!

Beauty is in the eye of the beholder

Beauty is in the eye of the beholder
men are beautiful too with vitiligo!

Anotha beauty from the inside out!

Anotha beauty from the inside out!
Beauty is in the eye of the beholder

WHen you first see a person with Vitiligo on the face or hands , your first thought is...

Beauty is in the eye of the beholder

Beauty is in the eye of the beholder
Friends with VIt-Gotta love yourself no matter what and WE DO!!

Friday, July 11, 2008

Changing a Skin Disorder into a Discussion

Well, I have been on a mission to find people who are affected by and living with Vitiligo. I don't know why it is that when I am looking for a variety of folks with Vitiligo to share their stories, I always run into African-American, female women ages 30 to 50. It's a wonderful experience, but "we" are not the only ones living with this skin issue.

Vitiligo is NOT just an African-American skin disorder. Now, I can't speak for the brother and sisters who CHOOSE to bleach themselves white, that my dear readers is another blog...but not the one for today. :-)


It is so funny because when I am out and about, I see many races with this skin disorder. However, I am in a car most of the time, sitting in LA Traffic and LA Drivers could go ballistic if I paused for a second to ask someone standing at the GREEN light, "Hi there, would you like to be a guest on my show?"

( I can't lie, I have tried it-was successful but they got cold feet). And got honked at like never before and NO I did NOT put up the finger (too classy for that) just waved and smiled in the rearview mirror "sorry baby, thanks for waiting" LOL LOL!

Anyway, I did meet a Mexican-American family and the Mother of 3 children who had Vitiligo in its advance stages. So of course, Ms. Maia attempted to speak broken Spanish (if that) and to no avail, I was getting no where fast. (Mom, I still don't understand why you did not teach, force, bribe, demand Spanish, of me? Since you have been teaching, speaking, reading and writing it for over 40 years!) Ok that's a family issue, but I am still salty 'bout that :-) Mom, u know I l luv you but just WHY????

.....But nevertheless, I am sure this middle aged mom would have had an interesting story to tell. I now have to purchase "Spanish-Quick and in a Hurry". I made that up but I am sure someone out there has that title.

If readers of this blog or anyone you know has Vitiligo and wants to share invigorating, organically funny and witty conversation (this is not a depressing situation, or at least I am not going to allow it to be in my life) about their life with Vitiligo tell them to email me at: Maipecanswirl1@yahoo.com
Let's chat.

In these ridiculous times, there is always some place that we can change ugly to pretty or bad to good. I really hope that when America and the World learns more about Vitiligo, they will become more familiar with it and understanding of people who live with it EVERYDAY. Let's become more humble, happy and knowledgeable. It is so interesting how just one topic can open up a treasure chest of stories from past to present....

Better days for everybody!
Maia

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